A few other challenges for my angelchild
These last few weeks were a nightmare for me and for Gidion. The end of August he landed up in hospital again with pneumonia. His platelets dropped to 50 (I almost had a heart attack). But praise our Lord he reacted to the treatment so well, that he was discharged 4 days later. In that time however, his pediatrician said that she was worried about the size of his ear canals, and that she wanted a specialist's opinion. When the ENT came to see him, she said we would have to put in grommets as soon as we can - he had "glue ears", which means that fluid was trapped inside his ear causing hearing loss. And it can progress to permanent damage.
So on 25 August 2011 we went back again... My nerves were up and I had no support, except my Father at my side and my friends on call on their cell phones. After 15 minutes the ENT came out again, only to tell us that his ears were too small and that it was impossible to insert grommets. She was very worried about his left ear, since it ended blindly and she can't see any middle ear. We had to go for MRI and CT scans to see what was wrong. Firstly, they weren’t able to sedate Gidion. The doctor couldn’t believe it. Then she topped it up with Dormicum. Oh my word… Gidion became like a wild, trapped animal. He went ballistic, and tried to hurt himself and his mommy, who was supposed to protect him. He did everything, except going to sleep. We had to try the next day. Thank our Father they were able to sedate him and we could perform the tests.
The scan results showed that Gidion’s left ear ended blindly against bone, and not his eardrum. This is all due to his disorder, Fanconi Anemia. But once again the Lord held Gidion in His arms. Everything (the organs and nerve) was present behind the bone. So sometime in future when he is older, they will manually make an opening in the bone by drilling into the bone. But for now we have to go to an audiologist and determine what his percentage of hearing is. He probably is going to have to wear an amplifier (soft band) to that he can localise sound and differentiate between sounds when there is a lot of background noise. But I am so thankful that my angelchild could HEAR! We can overcome this obstacle too.
Then on Saturday morning Gidion complained of tooth ache…I thought of jumping of a cliff! When I looked at his tooth, it had a grey spot on it. I took him to the dentist on the 5th of September, and he said to me that almost ALL his teeth were bad. He had to go under anaesthesia AGAIN. I couldn’t stop crying…hasn’t Gidion had enough? But I didn’t even know that it was going to get even worse…My medical aid refused to pay the costs and said all dental procedures were excluded. That means that we have to go to a cheaper theatre (I can just pray for our Lord’s protection and favour) on Wednesday 7 September. All in all it will be about R15 000. How am I ever going to pay all these medical expenses? I’m still waiting for a lot of invoices and only know an estimate of how much is outstanding.
But I am still putting all my trust and hope in my Father who I KNOW wants the best for me and Gidion. He will provide. And we WILL overcome all the obstacles that satan is trying to put in our way. I actually praise the Lord, because if satan is putting SO much effort in making our lives a living hell, God must have a HUGE plan for Gidion.
So on 25 August 2011 we went back again... My nerves were up and I had no support, except my Father at my side and my friends on call on their cell phones. After 15 minutes the ENT came out again, only to tell us that his ears were too small and that it was impossible to insert grommets. She was very worried about his left ear, since it ended blindly and she can't see any middle ear. We had to go for MRI and CT scans to see what was wrong. Firstly, they weren’t able to sedate Gidion. The doctor couldn’t believe it. Then she topped it up with Dormicum. Oh my word… Gidion became like a wild, trapped animal. He went ballistic, and tried to hurt himself and his mommy, who was supposed to protect him. He did everything, except going to sleep. We had to try the next day. Thank our Father they were able to sedate him and we could perform the tests.
The scan results showed that Gidion’s left ear ended blindly against bone, and not his eardrum. This is all due to his disorder, Fanconi Anemia. But once again the Lord held Gidion in His arms. Everything (the organs and nerve) was present behind the bone. So sometime in future when he is older, they will manually make an opening in the bone by drilling into the bone. But for now we have to go to an audiologist and determine what his percentage of hearing is. He probably is going to have to wear an amplifier (soft band) to that he can localise sound and differentiate between sounds when there is a lot of background noise. But I am so thankful that my angelchild could HEAR! We can overcome this obstacle too.
Then on Saturday morning Gidion complained of tooth ache…I thought of jumping of a cliff! When I looked at his tooth, it had a grey spot on it. I took him to the dentist on the 5th of September, and he said to me that almost ALL his teeth were bad. He had to go under anaesthesia AGAIN. I couldn’t stop crying…hasn’t Gidion had enough? But I didn’t even know that it was going to get even worse…My medical aid refused to pay the costs and said all dental procedures were excluded. That means that we have to go to a cheaper theatre (I can just pray for our Lord’s protection and favour) on Wednesday 7 September. All in all it will be about R15 000. How am I ever going to pay all these medical expenses? I’m still waiting for a lot of invoices and only know an estimate of how much is outstanding.
But I am still putting all my trust and hope in my Father who I KNOW wants the best for me and Gidion. He will provide. And we WILL overcome all the obstacles that satan is trying to put in our way. I actually praise the Lord, because if satan is putting SO much effort in making our lives a living hell, God must have a HUGE plan for Gidion.